Dr. Don L. Goldenberg at the Newton-Wellesley Hospital in Newton, Massachusetts is one of the nation’s leading experts on fibromyalgia. He is the Chief of Rheumatology at Newton-Wellesley and directs the Arthritis-Fibromyalgia Center there. People throughout the United States with fibromyalgia and other various little-known and little-understood chronic pain disorders 88head to the Arthritis-Fibromyalgia Center for evaluation. Articles featuring Dr. Goldenberg have appeared in The Boston Globe, The New Yorker, and the New York Times, and he has appeared on the Today Show. Part of the team working at the Arthritis-Fibromyalgia Center are members of the Department of Psychiatry and members of the Division of Physical Medicine and Rehabilitation.
The University of Michigan Health System has a Chronic Pain and Fatigue Research Center. Some of the research they are involved in regarding fibromyalgia suggests that the accepted eleven-of-eighteen tender points guideline for diagnosing fibromyalgia isn’t necessarily correct because it’s subject to different peoples’ pain thresholds, so it might be possible to have fibromyalgia even with fewer than eleven tender points.
In New Jersey, Wendy Skiba-King, Ph.D., APN, BC directs a behavioral medicine and clinical research clinic. She is certified as a psychotherapist and is an expert in Chronic Fatigue Syndrome, Fibromyalgia, preventative nutrition, and bio-behavioral medicine. Her practice “merges traditional medical practice and alternative therapies,” which is a well-rounded approach for fibromyalgia treatment. Being holistically-oriented, she is part of a new strain of doctors looking at fibromyalgia from a necessary mind-body-spirit angle, rather than targeting physical symptoms alone. She directs a Chronic Fatigue Syndrome research trial and also works closely with Richard Podell, M.D., who works a lot with the fibromyalgia side of things as well.
The National Fibromyalgia Research Association describes itself as “the source for what’s new in fibromyalgia research and education.” They have a list on their website (www.nfra.net) of various research studies they have funded or assisted. The most recent sum was $30,000 in 2006 to Dr. Dedra Buchward at the University of Washington. NFRA is based in Salem, Oregon, and it is a fibromyalgia syndrome activist organization. It was founded in 1992 by Jack Scott, and since then NFRA has funded more than 1.6 million dollars towards fibromyalgia education, treatment, and the search for a cure.
The National Fibromyalgia & Chronic Pain Association not only advocates for people with fibromyalgia and chronic pain, but it is also a proponent of clinical trials to help further research about fibromyalgia. They have links on their page (http://www.fmcpaware.org/clinical-trials2.html) dealing with various ways people with fibromyalgia can help in clinical trials.
Another place conducting clinical trials on fibromyalgia patients is the Chicago Research Center, Inc. It is a private clinic specializing in clinical trials for pharmaceutical and biotechnological industries. They have been around for decades and have played a role in more than 500 clinical trials. The study they currently have underway is an “investigational, non-drug approach for fibromyalgia called NeuroPoint®.”
There are many other research facilities, foundations, and organizations out there whose missions are to find out more about fibromyalgia. From National Fibromyalgia Research Association raising funds to FibroColors (https://www.facebook.com/FibroColors) raising awareness, more and more people are jumping in to the pool to help learn all we can about fibromyalgia.