First and foremost, please talk with your doctors. It’s best to have a team of medical professionals to help you as you deal with fibromyalgia. Next, see if there is a support group in town, whether through a community center or your clinic. There are chronic pain support groups, and it makes a world of difference to have someone to talk to face-to-face who understands what it is to live with constant pain. Since so little is known about fibromyalgia and we’re just now coming to understand all of the implications of it, it’s wonderful to have peers who haven’t just read about the symptoms but are instead living with them as well.
A nice way to gather information on your condition is to hit the books. Some of the best selling books on fibromyalgia from Amazon.com are “The Trigger Point Therapy Workbook” by Clair Davies, “The Fatigue and Fibromyalgia Solution” by Jacob Teitelbaum, and “Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome” by Rodger H. Murphree.
Naturally, the internet has a huge host of sites that offer advice, support, and forums with other fibromyalgia sufferers. Websites like www.webmd.com and www.mayoclinic.org are great places to know of if you’re trying to help someone without fibromyalgia understand the condition in clear-cut terms. The Arthritis Foundation, the American College of Rheumatology, and National Fibromyalgia Association all have websites that can offer support and some more technical answers to your fibromyalgia questions. National Fibromyalgia Association in particular (http://www.fmaware.org/site/PageServer) provides easy-to-understand facts about fibromyalgia, a community link to help you connect to others and to the pursuits of NFA. There are videos, fact sheets, and blog posts available as well. When it comes to medication resources, there are forums to discuss treatment. For example, on www.drugs.com there is a forum talking about user reviews of Lyrica as a treatment for Fibromyalgia.
Another website to check out is www.fibromyalgiaforums.org. Here there are support forums, guidelines for diagnosis, links for getting help, definitions of the medical terms involved in fibromyalgia, facts about fibromyalgia, tips for coping with fibromyalgia, a link for my fibromyalgia related resources, information on fibromyalgia treatment, and news about fibromyalgia. It is basically the fibromyalgia community website. The site describes itself as “a volunteer moderated forum and support group for people with fibromyalgia.” Some of the forum topics include “Sensitive to touch,” “Girlfriend with fibromyalgia, looking for ways to help,” and “Extreme pain! Need advice.” One of the site’s primary goals is to help people with fibromyalgia know that they’re not alone and give people an opportunity to make friends with other people suffering from fibromyalgia. Another neat aspect of www.fibromyalgiaforums.org is that they host blogs so that you can find a selection of blogs explicitly about fibromyalgia all in one place. It’s nice and convenient to have a high concentration in a place dedicated to fibromyalgia knowledge and community. For blogs outside of www.fibromyalgiaforums.org, you can check out this article from Healthline: http://www.healthline.com/health-slideshow/best-fibromyalgia-blogs.
However you choose to do it, one of the best resources you can give yourself when dealing with fibromyalgia is a community. In person or over the internet, it’s easier to deal with chronic pain with a support system of peers.